Specialist and complex services provide highly specialised and personalised support for people who are living with profound learning disabilities, Autism, functional mental health conditions or physical disabilities. This includes accommodation with care, such as care homes or supported living, and specialist services that support people in their own homes and community.
It is common for people to have co-existing health and sensory conditions. People may also have communication difficulties and experience distressed behaviours. People with specialist care needs can experience challenges in maintaining good health and wellbeing. Therefore, we want to work with providers who can deliver proactive, personalised models of care, embedding effective risk management and positive risk-taking in the least restrictive way.
The workforce within these services must be:
- multi-disciplinary, highly skilled and trained in planning and delivering personalised support
- equipped to handle the emotional and psychological demands of working with individuals who have specialist needs
- well supported to avoid burnout and high staff turnover rates
The current lack of data for people with more specialised needs means we are limited in our ability to share in-depth data on current and future placements or packages of care. The data contained within this document relates to people aged 18 to 64 who are living with profound learning disabilities, autism, functional mental health conditions or physical disabilities, but may not necessarily be identified as receiving a specialist service. Over time this dataset will be refined and expanded to offer more detail.
Home and community-based support
People with specialist care needs should be able to access meaningful daytime activities. We understand and recognise the important role that community-based services have in supporting people with specialist needs, however, more can be done to develop life skills in a way that is meaningful for the person. As a result, we will be undertaking a review of specialist day services provision in North Yorkshire and will be seeking the views of people on this important subject.
We will also be focusing on working with specialist home-based support providers as part of the specialist care commissioning model to clarify the training and skills needed to support people and ensure that their specialist care needs are met, where they are living in their own home.
Direct payments
Further work is required to understand the number of people accessing specialist services via the use of Direct Payment. We know there are over 650 working-age adults in North Yorkshire accessing services via Direct Payment. We plan to reach out to these people as part of our plans for the development of a specialist care commissioning model.
Accommodation with care
Wherever possible we aim to support people with specialist care needs to live in their own homes, rather than care homes. This is what younger people are telling us they want, and this is driving demand for supported living. The council and the Integrated Care Board have recently commissioned a housing needs analysis for people with learning disabilities and autistic people. This will be published soon and will help inform our market development plans. For more information, please refer to the housing with care and support section.
There will still be a need for a smaller number of care homes who can continue to support individuals when other types of accommodation with care are not appropriate. We have limited in-county residential and nursing capacity to support people with the most specialist care needs.
We currently have 124 care homes on our approved provider list, of these we have:
- 57 care homes supporting people with a learning disability
- 26 care homes supporting people with a physical disability
- 15 care homes supporting people with a nursing need
The current provision is a combination of purpose-built and converted buildings. The long-term viability of these buildings is an area of future development to ensure they can continue to offer long-term safe environments for people with specialised care needs. We need to ask ourselves, and the care market, can these buildings be long-term homes for people to age well in?
In October 2024, we found that out of 231 placements for 18 to 64-year-olds, 45% were with out-of-county providers. 79% of out-of-county placements were supporting people with learning disabilities or autism, 15% were supporting people with mental health needs, 5% were supporting people with physical disabilities and 1% were related to residential colleges. We need to better understand the reasons why a significant number of young people are moving out of our area, and whether this is due to a lack of provision in North Yorkshire, or personal choice.
Emergency respite/crisis intervention
Crisis intervention is a short-term, immediate response aimed at supporting people through and reducing periods of distress. The intervention should ensure an individual remains safe, and that the staff team are offering practical and emotional assistance to support the person through their crisis.
We are keen to explore options around services that can provide short-term ‘relief’ for an individual who is experiencing a period of distress. This is sometimes referred to as a crisis service or a safe space and involves varying levels of support. This can be in the form of building or community-based services, dependent on the support required.
This situation requires further work with the specialist care market to firstly prevent care and support from breaking down. We believe that the first option, where possible, should be to support the person in the place they call home. This could be additional support for care providers to ensure the person remains safe and the staff team have access to additional support. These proposals need further development including the views of people with lived experience, their families and care providers.
We currently provide five in-house short break services across the county, also known as respite services, so that their carers can have a break. These services predominantly support working-age adults with a learning disability and/or autism, as well as people with more specialist physical and sensory needs. Due to gaps in specialist care provision, these services often provide emergency respite or crisis support in the event of a person’s care and support package breaking down.
A specialist care community-based service has been developed by ourselves in the Harrogate area to support people with specialist care needs. This is a new bespoke day service facility and offers an exciting new opportunity to re-invent the day service offer for specialist support in Harrogate. The service will be able to offer:
- a personalised individual approach to care and support planning
- includes access to a sensory room
- adaptive equipment
- dedicated outdoor space
- opportunity to access the community
- bespoke activities for each person
We want to reach out to the care market and discuss developing similar services in other areas that compliment and bolster the work being done by our in-house care provision.
Specialist care for children and young people who are preparing for adulthood
We want to work with providers who deliver services that compliment and support a young person’s transition to adulthood. Support from the provider should be person-centered and enable the person to maintain and build on the outcomes they have already achieved in their preparation for adulthood.
Where the young person has an Education Health and Care Plan and/or Personalised Learning Plan, this should be used to support the identification of ongoing person-centered outcomes to support the person’s transition to adulthood.
More young people who are preparing for adulthood want to be more independent and move from the family home. A key area of service development is the transition from children’s services to adult services, supporting young people to remain independent within their local communities. This will include a key focus on areas such as supported living and day opportunities provision.
We want to develop a provider market that is responsive to the needs of young people preparing for adulthood and can offer services which promote independence, and enhance a young person’s ability to be an active part of their community and all that it has to offer.
Commissioning approach for specialist care
At present, we require all providers to join our approved provider list. However, specialist care providers tell us our fixed APL pricing model does not support the delivery of the highly individualised, flexible support that is required for people with intensive, and often fluctuating care and support needs.
We are therefore working in partnership with our Integrated Care Boards to review our commissioning model for specialist and complex care. Our aim is to increase the choice and availability of affordable, high quality and personalised services within the county. This will ensure more people with learning disabilities, autism, and physical disabilities are supported to live as independently as possible, in the place they call home, with strong connections to their community.
We want to work closely with providers of specialist services to ensure they can deliver high-quality, innovative services which reflect best practice. We want to stimulate the specialist care market by exploring alternative contracting and pricing models.
We will work closely with specialist care providers, people with lived experience and their families to develop a co-produced specialist care commissioning model that will look to address the issues raised within the market and provide person-centred, flexible support for those people living with co-occurring or multiple chronic conditions, who may experience distress and may need specialist support. We need to work with people and their families, so we understand what’s important to them, to identify their priorities to help shape a person-centered care market that supports people’s long-term aims, and goals and focusses on their independence.
Specialist and complex care: Messages to the market
The first step of engagement with stakeholders was undertaken in October and November 2024. This resulted in the creation of a specialist care steering group who are committed to co-producing a specialist care commissioning model that is sustainable, long-term and offers high-quality services.
The focus for the first quarter of 2025 will be around engagement with people with lived experience and their families and carers to truly hear the voice of the people we are looking to support and to invite some of these individuals to be involved in this work. The next step for the specialist care steering group is to identify several small working groups to take forward specific pieces of work.
We want people with specialist care needs to be supported to grow and develop as individuals. They should be empowered to make their own choices to lead fulfilling lives. Our aim is to ensure that specialist services enable people to live the lives they want.
The council, together with our health partners are keen to work with the market to develop high-quality and personalised services that:
- prevent admission into in-patient mental health settings
- deliver good outcomes for people who are being discharged from in-patient mental health settings
- enable people who are experiencing, or at risk of a mental health crisis, to recover and remain in the place they call home
- people with learning disabilities, autism, and physical disabilities are supported in environments that meet their needs, by highly trained carers who understand their strengths, challenges, and interests
- proactively reduce the use of restrictive interventions
- support people to be more independent People are more independent and have the chance to obtain improved skills and experience.
Young people preparing for adulthood
Over the coming months we will be co-producing a new model of commissioning for specialist care. This will include extensive stakeholder engagement and will provide actionable insights into how we need to develop the market to support a smooth transition between adult and children’s services while maintaining a strong focus on independence.