This privacy notice is designed to help you understand how and why we process your information when working with research partners who are undertaking a research study that has been approved through the Health and Adult Services (HAS) research governance framework. This notice should be read in conjunction with our corporate privacy notice.
Who are we?
We are a ‘data controller’ as defined by Article 4(7) of the UK General Data Protection Regulation (UK GDPR).
The council’s HAS research team works with external research partners, such as Universities, to approve and facilitate social care research.
The external research partners conduct research that has been identified as having a clear public interest, such as by identifying how council services could most effectively meet people’s needs.
The HAS research team approves research projects through the HAS research governance framework, and works to ensure research is carried out in the public interest with appropriate safeguards in place to protect personal information.
We have appointed Veritau to be our data protection officer. Their contact details are:
Information Governance Office
Veritau
West Offices
Station Rise
York
North Yorkshire
YO1 6GA
Email: infogov@northyorks.gov.uk
Tel: 01904 552848
What personal information do we collect?
The personal information collected will vary depending on the research being undertaken and this will be explained to you in more detail in the participant information sheet for the relevant study. It may include, but is not limited to:
- name
- age
- address or location information
- gender
- telephone number
Special category data may include, but is not limited to:
- racial or ethnic origin
- health
- sex life and sexual orientation
- religion
Why do we collect your personal information?
Personal information is used to facilitate academic research that is carried out in the public interest, such as research that develops a better understanding of the needs of our residents and identifies how to deliver effective services to meet these needs.
Who do we obtain your information from?
We will have obtained your information during the provision of the services you have been open to. The HAS research team connect the researcher to the service or team relevant to their research. The service or team you are open to may then approach you to ask if you would like to participate in the study.
Who do we share this information with?
Your information will be shared with the research institute undertaking the study.
Personal information that is not anonymised will only be shared with your permission when you agree to take part in the research project.
Researchers will adopt different approaches to obtaining information depending on the nature of their research. Some information may be shared by us, and some information may be shared directly by you.
If you are asked to participate in a research study, your participation will be entirely voluntary. Research methods employed by the researchers may include asking you to complete a survey or questionnaire, being interviewed, joining a focus group, or allowing the researcher to spend time with you as an observer. The research study’s details will be provided in a participant information sheet, which you should read carefully before deciding whether you wish to participate.
How long do we keep your information for?
The details of intended data use and storage may vary depending on the nature of the research and the research institute’s data policies. The details will be provided in the participant information sheet for each individual study, which you should read carefully before deciding whether you wish to participate.
Any outputs from the research, such as published articles, reports, or conference presentations will present anonymised information from the study and will not share your personal information.
What is our lawful basis for processing your information?
With regard to personal data:
- article 6(1)(e) – public task
With regards to special category data:
- article 9(2)(j) – processing is necessary for archiving purposes in the public interest, or scientific and historical research purposes or statistical purposes
For more information about how we use your data, including your privacy rights and the complaints process, please see our corporate privacy notice.